This is so tough. Ken is having a bad night. I wonder why it is always worse at night. I have been swamped at work, so he went to Denver alone to get his shot today, day 2 of his 7th chemo. He didn't make it all the way home before getting sick. He managed to eat dinner, but lost it a few minutes later. Then he was able to take his meds and he has at least kept them down. But at 10:00, he had the chills and a fever of 100.0. It is midnight and now his fever is 100.2. I am suppose to call the doc of it reaches 100.5. This is scary. It's the first time he has had a fever. I am suppose to take his temp at least twice a day. We aren't diligent about taking it that often, but he hasn't ever been above 98.6. He is usually lower. I am hoping that the 100.0 was just because he was getting so violently sick. And the next reading was because he had chills and was all wrapped in blankets. I can't wait till 12:30 to take it again. I pray that Ken is ok and can calm down and have a peaceful rest of his night. I doubt I will sleep again, to worried about him.
I just watched this video of a child that passed away this month. She is the daughter of a 'team in training' teammate of our son-in-law, Mark. Touching video. Cancer is so not fair. http://www.youtube.com/watch?v=YBA_x6CO_BA
Ken has had the hiccups off and on today. As I sit here and watch him, they get quieter as he is almost asleep. Then he wakes up and they are really loud again. Such a sorry side effect. He is sleeping in the recliner again tonight. Laying flat isn't easy when he is nauseated. It reminds me of all those weeks that he slept in the recliner when his lungs were filling up. He didn't lay down for about 7 weeks. Most of the time he couldn't even recline it, he just slept sitting up. We have come so far in his recovery. We were so close to it being a complete recovery. It is hard to see him go thru this for a tiny tumor the size of your little finger tip.
When he was getting his shot today, a male nurse that Ken and I have gotten to know, explained the bone marrow transplant procedure to Ken. He came home and told me all about it. We are praying even harder for the cancer to go away with the next rounds of chemo. The bone marrow transplant sounds so dangerous and life changing. I didn't know that the donor has to be a bone marrow match, but can have a completely different blood type. Ken says you might go into the operation with a blood type A and come out with a B. You take on the blood type of your donor. Weird. I would suggest to all of you that you get your bone marrow registered with the national bone marrow association. Ken and I registered ours 15 years ago while we lived in Denver. I got a call a few years ago that I might be a match. I had to go in for complete blood tests, but it turned out I wasn't quite close enough, so I wasn't able to donate. But I would in a second if I thought it would save some one's life. I was glad to know that the system still has me as a possible donor.
So now it is past 12:30 and I should take Ken's temp again. But he just fell asleep. I can only tell because of no hiccups and mild snoring. It is completely dark except for my computer screen. I don't have the heart to wake him. I think I'll wait an hour. Guess I'll go watch an Oprah recording that I have not yet been able to watch. I actually have over 100 Oprah shows saved. Didn't get to watch many while Ken was sick, so I have some catching up to do. This is called midnight rambling. I should be sleeping. Thanks for being there to keep me company and let me vent. This blog has been very therapeutic. Much better than doing laundry at midnight. Hope you are all resting well.
I just snuck in and took Ken's temp. It is 99.4 now. Still higher than it has ever been, so something is going on, but maybe a good nights sleep will take care of it. At least it is under 100. Guess I'll try to get a few hours sleep. Oprah will just have to wait.
God Bless You for caring about and praying for Ken and me. We love you, Bev
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Hi Ken and Bev,
ReplyDeleteI just caught up on your blog and I am stunned by this turn of events. My thoughts and prayers are with you. If there is anything tha I can help out with, please let me know. I spoke to my friend Randy last week, and he has completed his bone marrow transplant with successful results. No cancer, and he is rapidly building blood cells. He would be happy to talk with you about his experience. let me know if you want to and I will get you his phone number. Jeff
Hi Ken (and Bev),
ReplyDeleteI’m part of Mark’s team in training group. We receive updates on your status Saturday mornings before our group workouts. Whenever I’m struggling with a tough workout and I’m exhausted I think of how you don’t give up and keep on fighting this horrible thing called cancer. Your strength helps push me along to the end of my workout. I’ll be thinking of you on August 30th.
Stay strong and keep fighting!!!
Lindsey Randall