First I'll say that I posted a Day 0 just a few minutes ago. I don't want you to miss that post since it is full of pictures. Make sure you scroll down far enough to read it as well, or click on Day 0 in the blog archives.
Day +1 wasn't as fun for Ken as day 0. He woke up with a very sore throat. They have been telling him all along that his mouth and throat could get sores. They had us buy a baby soft toothbrush to use. They have him swishing and spitting with soda water 4 times a day. This is to prevent mouth sores. But his throat started it all. We didn't go to the clinic till 2:00, so he suffered all morning with his throat. He ate some oatmeal for breakfast, but didn't eat much lunch.
When we got to the clinic, they gave him another swish and swallow gel stuff. It smelled like cinnamon and he said it burned like it as well, but it did soothe his throat a little. The doc gave him a pain pill as well. We filled the prescription on the way home and he took it as soon as we got here. The pain pill helped a bunch. Ken was able to eat dinner and felt much better. More energy in the evening and he slept well. Guess we will start the soft food regiment, mashed potatoes, applesauce, jello, soup. His favorites. Good thing spaghetti is soft. I'm expecting mouth sores to be Ken's biggest problem. The doc and nurses say it will get worse before it gets better since he really doesn't have an immune system to fix it. So they said he will hurt until his counts pick up in a few weeks. Poor guy. I say bring on the pain pills. He may get a pain patch as well that distributes pain meds slowly and consistently.
We'll see how he does today. Day +2. He is still sleeping this morning, so that is a good sign. No high fevers yet, just a slight one yesterday. We don't go in till 12:30 today, so hope he can rest this morning. The rest of the week, we have to be there at 8:00. So this is his last day this week to sleep in.
In case this is the last chance you get to read this before Thanksgiving, we hope you all have a happy time with family and friends. Be sure to tell everyone how thankful you are for them. We couldn't be getting thru this without all your support. We are so thankful for all of you as well. God Bless You and Your Loved Ones. God Bless Ken too.
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Bob's biggest problem during his treatment was mouth sores. Lots of Ensure. Of course we knew this was coming so fortunately he had a feeding tube. He was so happy to be able to eat Thanksgiving dinner last year. He still has tenderness and can't eat spicy foods, but turkey and all the trimmings go down just fine. Here's to hoping Ken's sores don't last and he can enjoy his Thanksgiving dinner!!
ReplyDeleteWhew! Glad to read your updates! It was wonderful to see the pictures and think about the amazing science, plus hope and bravery, that accompanies everyone who is involved with Ken's treatment. We wish you a blessed Thanksgiving.
ReplyDeleteRichard and Sigrid Asher
Hope all is going well since there have been no updates.
ReplyDelete