Thursday, April 9, 2009
Complete Diagnosis
Well, we spent 30 minutes with Ken's new oncologist, Dr. Myint, pronounced mint. We were given an anatomy lesson in lymphoma. It turns out as we suspected. Ken's lymphoma was mis-diagnosed. He actually has Diffused Large "B" cell lymphoma which just means that we have to get more aggressive in fighting it. But now we know why the Rituxin treatments didn't seem to help. We are staying in Aurora under Dr. Han Myint's care for the time being. We may finish the treatments in Fort Collins, but for now, they are keeping Ken here. They will be moving him sometime today up to the 11th floor, oncology. He will spend the next 2-3 weeks there. Bummer. But in light of Ken's leaking issues, they want to give him his first chemo treatment in a controlled environment. They will watch him for at least 2 weeks, maybe 3 and then if all is well, they will take out the tubes. For now, we are just going to go at this a day at a time. We will know more in a day or so after more meetings with the doctors and more testing for Ken. Just wanted you to know what we are doing. We just met Melissa, Dr. Myint's nurse practicioner that will be working with us for the next couple of days. She was very informative as well and answered some of Ken's burning questions. Wow, we knew this. But now that we really know it, wow. We are thankful that we are here with these doctors. THANK YOU AMY CRAIN for helping us find them. God has been working in miraculous ways to lead us thru it all. Thank you for asking Him to help us. We couldn't get thru this without His support and all of yours. As the lunch room lady says to me every day as I pay for my meal, "Have a Blessed Day!"
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Ken,
ReplyDeleteWe are thinking of you and you are in our prayers. We can't wait to see you next month.
RCHOP says "om nom nom"
ReplyDelete"om nom nom" is the noise I make while eating a delicious food... feel free to google for examples...
I don't remember why that helped me on an oncology test, but I thought i'd share that.
R-CHOP is the likely treatment, I think (The R being Rituxan)
A correct diagnosis is another wonderful step. If only it would've been an earlier one!
Glad to hear the spirits are high, Mary and I are thinking of all of you guys,
Keep it up!