Ups and downs. Good news! One lung cavity drainage tube the size of a garden hose was removed last night. For the first time, I was able to sleep on my side a bit, although mainly still on my back. The current plan is to let it keep accumulating drainage and have it tapped off as needed. All good last night, but this morning the back of left lung has started hurting again similar to before I arrived. Right lung cavity continues to drain at a higher rate. They explain that I am losing protein through this so I am on a high protein but low fat diet. The nurses asked if I was losing weight before I came and I laughed because I was gaining weight. Now all of the sudden, I don't seem to be hungry which is starting to freak me out. One funny story was just this morning, I ordered 2 low cholesterol fake scrambled eggs. When the tray arrived, I took off the cover of the plate and I had never seen so many eggsi on one plate in my life. They filled a 9" plate and were folded over like a omelet. And there was two of them. They looked like four huge grilled chicken breasts stacked on top of each other. The smell of so many eggs was so overwhelming and I had to immediately slam the cover back down. I only opened them once more to show Bev. Don't think I will order eggs tomorrow.
I appreciate all of the kind emails and all of the jokes. Words of encouragement have been fantastic. A hard thing for me to process is all the stories of people that have gone through this before and are normal now. I sit here and try to envision that point in time but can't always focus. That's when the pain and the "why me" and the "I can't do this" come over me. Then I look at the the nice notes people have sent and they ease my mind. God knows I have always suffered from "middle child syndrome", trying to just keep going and avoiding conflict. Okay, maybe some at work would disagree with this analysis (LOL!) but it's true, it's true! This is by far the greatest mental challenge I have ever faced. Why are all the survivors always smiling? Are they stronger then I am? Can they just handle it better than I? Makes me feel somewhat inadequate at times. I have a great family and friends as a support group, and although you might not realize it, you as well are cancer survivors by just knowing me. I just read that yesterday and it hit home. I feel for all who have been through this before or those that are on this journey for the first time as well. I would not say I was as close to my parents and siblings as most have been in their life. My dad lived to 90 but died of some form of skin cancer. That was the only cancer in my family I knew of except all my uncles died of lung cancer because they smoked. They were in and around the Chicago area, one even a politician, but my dad said they were all crooks! In Chicago? Who would have thought! LOL! I even have a picture of me as a kid standing in front of DeVault Elementary School somewhere there!
I am waiting for the first visit of my Oncology doctor and my surgical doctor together in about thirty minutes. Fear is setting back in because I'm still leaking at a pretty good rate, which seems to be my complication. I can see it in their eyes. But I will hope for the best. Ups and downs!
Re: the e-mail I just sent you.
ReplyDeleteWe must be on the same wave length. Maybe it's because we both howl at the same totally inappropriate jokes!
joyce
Hi Ken, This is Bob Hitchens wife Barb. Bob got his diagnosis almost a year ago to the day that you got yours, and he is doing great. You and Bev have quite a journey ahead of you.
ReplyDeleteIt is a seemingly long and sometimes hard journey, but there is an end. When we started Bob's journey I wondered if We would ever be "normal" again. After ayear we are pretty much there. All of Bob's doctors say he is doing extremely well and better take good care of his teeth so he doesn't end up a toothless old man.
If you need any help negotiating the path or just want to talk let us know. My e-mail is b.hitchens@comcast.net . Stay strong and keep laughing!!
Barb Hitchens
Hi Ken,
ReplyDeleteI always thought you should take an extended break from your work, but jeeeze, this is not what I envisioned! I’m not too good with words soooo, I was hoping that Uncle Stan or someone had already posted an eloquent and heartfelt message to you offering support and encouragement so that I could do some cut and paste to create my own message to you. No such luck, so I guess I’ll start from scratch:
Dear Ken,
Sorry you are sick. Get better.
Jeff Brown
Hi Ken -
ReplyDeleteJust wanted to let you and Bev know that we are thinking about you guys and praying for you both. I know that your great sense of humor will be such a powerful weapon in your fight! Let us know if there is anything you guys need.
We love you both so much!
Heidi and Mike