The leakage of kyle? (the fatty remains handled by the lymph system) into my right lung at a high rate continues to have my doctors moving the line in the sand back a little. Our plan this morning (Friday the 13th) was to remove the tube, then have my second Rituxin treatment tomorrow and sleep in my own bed tomorrow night. They have decided it best to leave it in tonight and try to remove it in the morning before the Rituxin treatment begins. There is no science to this they say, just a feeling considering me, the amount of leakage, advantages and disadvantages. I certainly know I am too much a black and white person to ever be able to be a doctor. I like to go on green and stop on red. Never have done good on yellow. They are at yellow. But we are still moving forward.
Today was the first day I walked out of my room here on the Oncology floor. We came in so fast Wednesday afternoon the surroundings never really sunk in. Bev was gone and I was ready to venture out. Immediately upon seeing all the books, pictures and pamphlets about cancer I was overwhelmed with emotion. I was finally on my own standing in my new surroundings, my new life. My emotions went all over the place. I didn't want to break down as the nurses station was just down the corridor. Luckily, the newborn section is on the same floor, so in Norah's honor that is where I headed. Things got better as I found the first Coke machine I have seen since our trip to the basement. When I finally made it to the nursery however, no babies were there to watch. So I walked the entire floor, eerily with all the big empty halls on this the 13th, then came back to my section and started to read all the pictures and pamphlets. When I told Bev, she said we are both still in a period of denial and I believe that is probably somewhat true. I told my doc Susan about this. She has been very helpful walking me through this journey of acceptance. She says she can see a drastic change in me from last week when I was first inundated with all the information. She thinks my mind is headed in the right direction which made me feel more comfortable.
So tonight, while Bev's playing bunko, I'm watching scary movies! In room 13! LOL!
Tomorrow the sun will rise again giving us all a new day to live! God bless each one of you!
Good Morning Ken!
ReplyDeleteThumbs up, Big Guy! Everyone in Yermo, California is standing with you! All of us and "The Way Home" are lifting you up!
Before you know it, you will be home hugging Bev and watching the "Travel Channel," holding that precious little Grand-daughter in your arms, standing on your patio drinking a great big Coke, creating your favorite Chef's choice cousine, composing a little tune on your Grand Piano, flipping them papers out your car window, making more DVD's and CD's for Mom, and enjoying life more than ever before!
We love and miss you with all our Hearts!
God Bless You, Bev, and Your Family!
Love Always,
Cathey Rhonda, Jordan, Cody, Racer, Samson, Delilah, Froggies, Rita, and Pepi La Poo says, "Me Too!"
PS I originally posted this in the wrong place. I reposted because I wanted to make sure you got it! Now, you will have twice the love and encouragement coming your way!
HI Ken
ReplyDeleteYou are in my thoughts and prayers. tjanks for keeping us informed on this blog. It is so reassuring to read your words instead of having to hear second hand, or to be guessing.
Jeff
Hi Ken,
ReplyDeleteWe are so sorry to hear about your illness, but we know you are strong and you will pull through this with flying colors! Our thoughts and prayers are with you daily, and we love you. Stay strong and keep your positive attitude and thoughts. We send all our love, Rickey, Robin, Matthew, Michael and Chad.
P.S.- Lay off the coke!! Ha, Ha, LOL!!